Developing a Coordinated Registry Network to Evaluate Data on Treating Basilar Artery Occlusion

Basilar artery occlusion (BAO) comprises roughly one percent of all strokes, leading to a significant risk of disability and mortality. Endovascular therapy (EVT) is a non-surgical treatment used to treat ischemic stroke and is increasingly recognized as an effective form of treatment. However, there has been limited evaluation of data on treating BAO with EVT. 

In a study in the Journal of NeuroInterventional Surgery, Dr. Jialin Mao, assistant professor of population health sciences, and colleagues conducted a study to aggregate data on BAO EVT from existing registries in the US. Researchers further evaluated the availability, completeness, quality, and consistency of common data elements (CDEs) across data sources. Researchers collected and harmonized critical CDEs to create a Coordinated Registry Network (CRN) 

[Per our findings] Aggregating real-world data for a CRN is possible and could prove to be very valuable,” said Dr. Mao. She and colleagues emphasize the importance of funding to support this work. It requires significant partnership-building and stakeholder engagement to succeed.”  

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